What we wish we had known before starting a headache clinical registry: insights from the Italo-Brazilian partnership
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https://doi.org/10.48208/HeadacheMed.2025.20Palavras-chave:
Headache disorders, Routinely collected health data, Real-world evidence, EpidemiologyResumo
Abstract
Headache registries have emerged as a logical solution for bridging the gap between what we know and what we do, empowering disease awareness, enhancing knowledge and facilitating personalized management. The role of headache registries in expanding our understanding of patients’ journeys, sociodemographic characteristics, endophenotypes, treatments and healthcare resource utilization is well documented around the world. This perspective article will explore some practical ideas to develop a headache clinical registry from the ground up, through the original contributions of Italian and Brazilian registries.
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Copyright (c) 2025 Vanise Grassi, Mauro Eduardo Jurno, Piero Barbanti (Author)
Este trabalho está licenciado sob uma licença Creative Commons Attribution 4.0 International License.
